The association for children with heart disease is a non-profit organization that focuses on supporting children with congenital heart defects and their families. The organization offers a range of resources and knowledge related to diagnoses, treatment and lifestyle for children with heart disease. Through its knowledge bank, parents and relatives can gain access to important information that can contribute to a better understanding of the situation.
In addition to information work, the association organizes activities such as summer camp at Solåsen, where children and families can participate in social and developmental activities. The association is also involved in research and works for the rights of children with heart problems. Support for parents and relatives is offered through HOBS (Hjertebarn og Omsorgberettigede Support), which provides the opportunity for conversations with experts. The association also has an annual heart children calendar, where the income goes to support their activities.