The Center for Rare Diagnoses is a nationwide competence center that focuses on more than 100 rare diagnoses. The center uses an interdisciplinary approach to provide comprehensive support to patients and their relatives. This includes courses and training, as well as information on rights and opportunities for those affected by rare diagnoses.
In addition to patient-oriented services, the center is engaged in research and development in the field. They collaborate with healthcare personnel and other service providers to improve the treatment and follow-up of patients. The center also offers accommodation for children and young people admitted to hospital, as well as an information source through Sjeldenpodden, which provides insight into various rare diagnoses.
