Huntington Network is an organization that aims to provide information and support to people working with or affected by Huntington disease. The organization offers advice from specialists in rare diagnoses, which can be useful for both support contacts and personal assistants. Through its work, Huntington Network aims to increase competence and understanding of the disease.
In addition to advice, Huntington Network offers e-learning opportunities that focus on training and competence-building. This provides opportunities for participants to learn more about Huntington disease and how they can best support affected individuals. The organization also functions as a professional network where members can share resources and experiences, as well as receive newsletters with updates on new resources and measures related to health and welfare for people with Huntington disease.
